skinnyminilinny's Journal, 07 Mar 20

This is for some of the people on here that don't understand what some of the people on here live with day to day.
I've been suffering inexplicable pain for years, and a number of changes in me, for no apparent reason. .. until the time comes when they tell you what you have ... There are two feelings, finally you know what you have and the other, how I’m going to get through this... but every day is a battle won !! the lack of courage, wanting to lie down, taking frequent and many medications is like having a small pharmacy on my night stand. Apart from that, the thousands of comments, "why have you gained weight like this?? Why are you so skinny? What's wrong with that hair? You had such pretty hair and now it is all falling? and those spots on your face? You used to be so so beautiful, what happened to you ?? .... all this is true and that's why I share it! Silent and invisible diseases DO exist !!!!!
When you have an invisible illness, it's hard to fight with ignorant people ...
They don't understand it until it happens to them. Life takes many turns!!!
Tired of being told, did you go to the doctor? Did you try this? Did you try that? Yes, I already tried and keep trying everything!
Doctors say this disease is forever. I will not heal. However, I will not give up, but I want to make others realize, A nap will not cure me but it will help me a lot, however, many do not like the sick to sleep so much. I am not lazy, I am taking medication and that makes me very sleepy all day. I struggle with the pain, the mobility problems, the fatigue, the extreme fatigue and apart the criticisms of my environment on a daily basis. The most frustrating part is that people look at me and say, "It can't be so bad; you look good," despite the fact that my body is experiencing excruciating pain everywhere, of course I look good, I try to always look good, it's an "#Invisible" disease, I apologize if I do not go to events that I would love to attend, one day you will understand my daily struggles. This disease affects me physically, mentally and emotionally.
I need your support, NOT YOUR JUDGMENT.
If I fall, I don't need you to get me up, I need you to throw yourself on the ground with me until I have the strength, desire and courage to move on, Because YOU CANT SEE rare autoimmune diseases, but YOU CAN FEEL THEM...
they are there ... Attacking silently, but extra painfully. I'm seeing those who are going to take the time to read this post until the end.
With the post comes the following request:
Please, in honor of someone who is fighting against: Autoimmune disease.
CuCI (Ulcerative Colitis, Crohn’s Disease)
Hypothyroidism and hyperthyroidism.
Polycystic ovary syndrome. Rheumatoid arthritis, Chronic pain, Chronic Dystemia
Endometrosis, Multiple sclerosis.
Aplastic Anemia, Myasthenia gravis.
Pulmonary hypertension, Chronic Fatigue Syndrome, Diabetes, Celiac disease
Anxiety and DEPRESSION (panic attacks)
Fibromyalgia, Raynaud and Sclaroderma.
Lupus, Trigeminal neuralgia, Sjogren's syndrome or any other illness that IS NOT VISIBLE , please don't judge, just be supportive.

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1034 kcal

Fat: 74.65g | Prot: 57.80g | Carbs: 39.28g.   Breakfast: Ambassador Little Smokies Smoked Sausages, Trader Joe's Shredded Green Cabbage, Cooked Egg White, Coffee-Mate Sugar Free French Vanilla Liquid Coffee Creamer, Organic Valley Heavy Whipping Cream,  Coffee. Lunch: Hellmann's Avocado Oil with A Hint of Lime Mayonnaise Dressing, Turkey Dark Meat,  Lettuce Salad with Assorted Vegetables, Pascha 85% Cacao Bitter-Sweet Dark Chocolate Chips, Ghirardelli Dark Chocolate Chips, Pecans. Dinner: Great Value Bratwurst,  Cabbage Soup. Snacks/Other:  Cashew Nuts . more...